A core outcome set (COS) for perinatal interventions for congenital diaphragmatic hernia (CDH).
Thank you for your interest in this study. Hereby, we would like to invite you to contribute to the development of a core outcome set for congenital diaphragmatic hernia
WHAT IS THE PROBLEM?
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Today, too often studies on the management of CDH, including in the perinatal period, use different outcome measurements. This makes it difficult to compare or combine the results from those studies.
WHAT IS OUR OBJECTIVE?
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We aim to develop a core outcome set (COS) for perinatal interventions for CDH. This would be a common set of outcomes that all researchers studying perinatal interventions for CDH should use. At this stage, we focus on short term outcomes, i.e. during pregnancy and early life. Once such COS is available, its use can improve the quality of research, guide clinical practice and improve patient care.
HOW CAN YOU HELP AND WHAT WILL IT TAKE?
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We want to know what outcomes you think are important, because of your expertise or experience in CDH. By participating in a three-round Delphi survey you can rank outcomes based on their relevance.
Completing one survey takes around 20 minutes. This can be done page per page, saving your answers and returning to the questionnaire later, but within 4 weeks.
If you are willing to participate, click this link start the survey.
Thank you for your interest, on behalf of the COS Steering Group,
S Vergote, J Deprest, F. Debie, J. Bosteels, A. Benachi, P. De Coppi, C. Fernandes, K. Lally, H. Hedrick, I. Reiss, J. Duffy, F. Meijer, B. Power